Update!!!

So i really need to be better at updating....... Quite a bit has happend since last time... Thomas got a feeding tube put into his stomach, it has really helped him! His weight has finally leveled off and he isnt loosing anymore. Thomas has had 3 rounds of chemo.. after round #2 the drs did a CT scan of the chest to see if his tumors were shrinking. The dr came in the room and said "Unfortunatly there not shrinking" So the chemo wasnt working, which wasnt a huge suprise to us cause we were kinda expecting that.. So we asked what plan B is, he said that he wants to try a newer form of chemo, its been around for about 6 years, he said he would get those chemo treatments once a week for 3 hours each time. So they sent us over to the infusion room to wait to get hooked up to the new chemo... they were just about to get started when the Dr came RUNNING into the room!!!! He said "Thomas, i have some good news" We were anxious to hear what he had to say, he told us that the radiologists compared his scnas wrong and that the chemo WAS acutually shrinking the tumors a tiny bit, even a tiny bit is a progress!!!!! So he said he wanted to stick with the origional chemo and try that for two more rounds and then do another scan. So they admitted him up to the 4th floor and he was there for 5 days getting chemo! He handles chemo pretty good. He doesnt get nauseated much, thank goodness!! Other than being tired he doesnt have any other side effects. We try and keep him out of the public for a week after chemo, his counts get really low and we dont want him to catch anything. The drs put him on antibiotics just as a precaution so that he doesnt get sick. Well on Monday (Oct. 11) He went in for round # 4 of chemo and the drs noticed that the sore on his chin looked much worse, it has been draining alot more, so they looked at it really good and cauterized it.. when the dr was cauterizing it he saw some puss squirt up into his mouth.. so the drs were looking into his mouth to see why it would have done that and they found a pretty big hold in his gums!!! So thats why his chin keeps getting infected!!!! The dr did NOT want to start chemo since he had an infection. So instead they admitted him to the hospital and placed him on strong IV antibiotics and told us that they will not start chemo again until the infection is cleared up! Thomas was in the hospital for 3 days, and then they sent him home with the IV antibiotics, he will have to be on the antibiotics for 2 weeks, and then the drs will look and see if the infection looks good enough to start chemo again. We really hope the infection clears up soon!!
Also, some exciting news, Thomas is working with an organization called "Anything for a friend" They are going to do a Fundraiser event for Thomas on December 11th! The organization has been very sucessful!!! They have helped 4 people so far this year and have raised over 100,000!!! Check out their website at www.anythingforafriend.com Hope we will see you all at his event!!! I will update again soon!!

Scentsy Fundrasier!!!

Hey Friends and Family!! We are doing a Scentsy fundraiser to help with Thomas's Cancer treatments. You can place your orders from September 11th-18th. You can either place your order with me, or you can go to www.acosper.scentsy.us and there will be a link on the left side that says Thomas K Fundraiser, click on the buy from party. If you place your orders online there is a $5.00 shipping fee. Please contact Jordan Kammeyer via facebook or call me to place an order or for questions (801)628-2043 I will also have all the sample scents at my house if anyone wants to come over and smell them. We all love scentsy so this is the perfect time to buy since its going towards a great cause!!!

Comedy Funraiser!

Hey Friends and Family!!! Wiseguys Comedy Club in Ogden (269 Historic 25th Street) is having a Fundraiser comedy night for Thomas. Its $15.00 at the door, per person and that includes: The show, Dinner and Drink. The doors open at 6:00pm and the show starts at 7:00pm, the show is about 1 1/2 long. All proceeds are donated to Thomas to help him with his Cancer treatment. This is a family event so people of all ages are welcome to come, small kids are free. Please feel free to email me at tom_jo_kammeyer@hotmail.com with any questions! Please come out and support Thomas!!!!!

Where did my hair go???

Thomas finished his first round of chemo on the 13th of August. He got really sick, couldn't eat, kept throwing up, and he was really tired all the time. On August 19th he had been having chest pains throughout the day, around 8 pm they were getting worse, so i took his temperature and he had a fever of 102.00!!! So i rushed him to the ER. Once we got to the ER were told them what was going on, and the dr said the wanted to get some blood work and a couple scans, so they came in to get blood cultures, and then they took him to get a chest x-ray and a chest CT scan. The dr came in a little bit later and said his white blood count was very low, it was 0.3.. where a normal blood white count is 3.0-5.2.. so his was low!!! The ER dr called the on call dr at huntsman and told him what his levels were, the dr at Huntsman wanted him admitted to their chemo floor asap!! both the xray and the ct scan came back normal with no findings. So we left the ER at 2:30am and drove to SLC. We got to Huntsman a little after 3am.. the Dr came in and said the plan was to get him on strong antibiotics for several days to get him counts up! So he was in the hospital for 4 days, he was released on the 22nd. In the hospital he wasn't able to eat, he got sores in his mouth, and he kept loosing weight. So the drs decided they wanted to put a feeding tube in, So the nurse came in and put the tube in. It was pretty intense to watch, it wasn't complicated or anything, but it just kept making him gag, and made it hard to breathe when he was gagging, his feeding tube goes through his nose and into his small intestines. He now is at home, he gets hooked up to the IV feeding machine at night, he gets fed 5 cans over a 12 hour period. were trying to get him up to 9 cans but right now his stomach cant handle it. And yesterday was two weeks since his first round of chemo, and his hair started falling out today!! So a few hours ago he shaved his entire body!!! Thomas starts his second round of chemo on Aug 30th!! Enjoy the pictures! I will update again after round 2!!

The start of Chemotherapy!!

Ok so lots has change since last time. We met with the new Dr. His name is Dr. Gouw, he is amazing, he is probably my favorite dr so far!! He is so nice!!!! Dr Gouw wanted to do a full body scan to see if his Cancer spread anywhere else, The results came back and it has NOT spread anywhere else, thank goodness!! And also he wanted him to get a biopsy done of his tumor in his lung to see if it is still Sarcoma. So he had the biopsy done at U of U, they sedated him and he had to lay on his back and they went through his back and into his chest to get the biopsy, he was only suppose to stay at U of U in recovery for 2 hours but during the biopsy his lung collapsed a little bit and so they needed to keep a close eye on him, so we ended up being there for 5 hours. The biopsy results came back and it is still Sarcoma, which sucks in a way because Sarcoma is more difficult to treat, but its good in a way because then there isnt a second type of cancer to deal with. Thomas had to get a port placed on Monday the 2nd. The port is used during chemo, and its also used to get blood. When he got his port placed they told him he would start chemo in one week!!! So we wanted to go on a little vacation before he started chemo, so my parents took me and thomas to VEGAS!! We were there from Aug 3rd-6Th... Thomas has never been to vegas before so he really enjoyed it!! So he started chemo on monday the 9th and today is friday the 13th and he goes home today. He has done really well through chemo, so far he hasnt had any side effects. He is doing great. He is really enjoying the free room service at Huntsman, he can call them anytime he wants and they will bring him whatever he wants! He has about 6 iv bags hooked up to him, 2 of them are the chemo, i have pictures below of the iv stand, but i took the pictures today and the chemo bags are already gone so i dont have pictures of those, i will get some next time. When they bring out the chemo they have to wear suits and gloves because they said its very harmful if it gets on your skin. He has so many fluids going in to him and so he has to go pee alot, which he isnt use to cause at home he never ever goes to the bathroom during the night, and now here at the hospital he goes 5 or 6 times a night. Thomas gets to come home today, and then he has to start treament again on Aug 30th. They said 7-10 days after his chemo treatments is when it gets scary, they said his bone marrow and blood cell count gets really low and so they have to have nurses come to our house and check on him, they said his immune system gets very low and he has to be really careful about going into public so he doesnt catch any germs. They said he can bleed alot easier, they dont even want him flossing his teeth because it could cause him to bleed. Check out the pictures below (also a few pictures from vegas!) I will post again next time!

Im Back!!!

Ok so i know its been forever since i last updated.. where should i start.. On my last post thomas finished radiation, since then, alot has happened.. he keeps getting infections in his face, where the tumor was, and it has been draining for the past two months, we have made several trips to Huntsman for the infection, the dr have prescribed two different kinds of antibiotics for it, they have cauterized it, and they even did a CT scan of his face to see if there was an abscess. Thank goodness there was no new growths in the mouth. The newest antibiotic has been working for him. And his face is now less swollen and its not draining much anymore. So hopefully the infection is finally going away!!! Thomas also had a CT of his head and neck to check for any new cancer, there was no new cancer in the head or neck but when the looked at the neck CT they could see some growth in his chest, and since we knew that Sarcoma can spread to the chest, we were really concerned about this, and so was the doctors, he wanted Thomas to get a chest CT asap, so we had an appointment for the next day.. so we went back to huntsman, got the CT scan and then waited for a week for the results. I started a new job and so i wasn't able to go with Thomas to his appointment, so Thomas mom and his sister went with him. I told Thomas to call me at work when he was done with his appointment, i was very anxious waiting for the call, and then finally he called me... it wasn't good news. He said the cancer HAS spread to his lungs and there are 4 tumors in his lungs. Dr. Bentz said he will need to see a new dr for the new tumor since its in his lungs, and Dr. Bentz only deals with head and neck cancer. Dr. Bentz said that Thomas will most likely have to go through Chemotherapy for this cancer, but he also said there is no chemo out there that has been proven to treat Sarcoma, so he said that he will be put on a "clinical trial".. that makes me a little nervous but i guess its better than not having anything done at all. Thomas has an appointment with the new dr tomorrow, the 26th of July, and again i cant be there because i have to work. I'm having a hard time not being there for him, we have alot of support from friends and family so he wont ever have to go alone, but i wish i could be there for him... Also, Thomas has lost 111 lbs since January.. he is so skinny now. so i thought i should post some pictures so you all can see! Well i think that's all for now, i will update again after his appointment tomorrow! Love you All!

Radiation is DONE!!

Wow i havent updated in a while. Thomas is finished with radiation! Thank goodness!! He finished about 2 weeks ago. He is starting to eat small things again, which is great! He has lost a little over 80lbs now!!! So im very glad that he is starting to eat again! He is still pretty tired, he works as much as he can, its usually 4 or 5 hours a day! He has a re check with Dr. Bentz on 05/19/2010, and then he will have his next surgery sometime this summer. Here is some pictures of the radiation mask that thomas had to wear during every treatment!

8 treaments left!!!

This is Thomas sitting at the table, he gets so tired that he falls asleep everywhere!

Is it over yet?!

Well Thomas has been going to radiation Monday-Friday, and he was doing really well until about a week ago, He is starting to feel all the radiation effects and he is having a tough time. He has canker like sores all over in his mouth, his mouth and tongue is swollen, he cant eat hardly anything. Its been really tough. The last few days his beard hair has been falling out, it got to the point last night where you could just touch his face and clumps of hair would just fall out. He has lost 53 lbs since January. He tries to go to work but now that he started radiation its really wiping him out, He gets extremely tired! Other than that he is doing good, his leg is healing great and the flap of skin in his mouth is doing great, the Dr said he will do his next surgery around summer time! Here is a few recent pictures that i took yesterday (04/03/2010)