Chemo!!!

Well, Thomas had a 6 week break after radiation, and then the dr wanted to do another scan to see how the tumors responded to radiation. The scan showed that the Brain tumors responded to radiation and shrunk slightly, and some of his chest tumors shrunk and some grew. So the dr wanted to tell us what our next option was, he said chemo! He said thomas would be doing out patient chemo for 5 days every 3 weeks. Day 1 he will get a 6 hour IV chemo called Liposomal doxirubicin (spelling) and also a chemo called Cisplatin and then he will take a pill at home called temodar. Day 2 AND Day 3 he will get a 4 hour IV of the cisplatin chemo and take the temodar at home, Day 4 and 5 he just does the Temodar at home. The temodar pill is for the brain tumors, it is suppose to cross the blood brain barrier and get to the brain tumors. Thomas got his port placed back in a week before he was suppose to start chemo, and then the following week he was suppose to start, but then he got shingles and so his chemo was post poned 2 weeks. His first round of chemo was June 8-12, his 2nd round of chemo was June 29- July 3rd. And he will start his 3rd round of chemo on July 13th. After every round of chemo, thomas has small seizures. They are not nearly as bad at his first seizure. These seizures he is fully conscious the entire time and he can feel when his seizure is about to happen. He will feel his arm start to tingle, it starts in his hand and works its way up to his brain, once it reaches his brain his arm starts twitching and jerking, that part is the actual seizure. We have medicine that is suppose to break the seizure, so these small seizures only last about 1 minuet. Hes had 11 of these small seizures since his first round of chemo. He is following up with a neurologists and she said these small seizures do not cause any brain damage, so that's a good thing! Since the chemo is getting to the brain it could be irritating the brain and causing these seizures. Today is July 9th, yesterday thomas woke up and had SEVERE head and neck pain, and he was starting with a fever. I gave him some Tylenol and it broke the fever and he was able to rest and felt a little better. Later on in the day his fever returned, this time it was higher and he was having the head and neck pain again. So we decided to take him to the U OF U, we got there at 8:00pm and they got us into a room at 9:00 pm. The drs came in and wanted to do a brain scan and wanted to do blood work. They did blood work and it came back positive for a blood infection. The dr was concerned that he may have meningitis and he wanted to do a Lumbar puncture. He wanted to get the brain scan first, so he did that and we waited for the results. The dr came back in about a hour later and told him that he has MAJOR swelling in his brain and that it would be unsafe to do the lumbar puncture. So instead they wanted to admit him to Huntsman to start on heavy antibiotics! He was admitted to Huntsman at 6:00am.. it was a very long night for us! Thomas is still in the hospital and receiving antibiotics. They are still trying to determine to source of infection. Hes feeling pretty well and he should be released from the hospital either on the 10th or 11th. Thomas will start chemo again in 2 weeks and then after this round of chemo he will have a chest CT and a Brain MRI to see how the tumors are responding to treatment. We ask that you please keep thomas in your thoughts and prayers and pray that this chemo will work! The drs have told us that this is really his last option and that they most likely will not be able to fully get rid of his brain tumors because of the size and how many tumors are in his brain.
Thanks for every ones love and support!!!!